Programa de autocuidado para padres de niños en la Unidad de Cuidados Intensivo, Hospital del Niño Dr. José Renal Esquivel

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dc.contributor.advisorMartínez, Jorge
dc.creatorRamos Ramos, Irina Aylín
dc.date.accessioned2026-07-06T21:13:09Z
dc.date.available2026-07-06T21:13:09Z
dc.date.issued2026-03-15
dc.descriptionChanges in daily routines significantly affect people's quality of life, particularly when they are caused by a serious medical condition that results in hospitalization in an intensive care unit, both for the patient and their family environment, especially for the parents, affecting their routines, roles, and occupational balance. The present project aims to design a self-care program for parents of children hospitalized in the Intensive Care Units of the Dr. José Renán Esquivel Children's Hospital, to promote occupational balance. To this end, an interview was conducted to understand the impact on the occupational balance of parents with a child in the ICU. This interview revealed that parents face difficulties in organizing their daily activities and maintaining their occupations. Given this reality, "CuidArte" emerges, a self-care program designed to support parents in areas of greater occupational imbalance. This program promotes self-care as a meaningful occupation, highlighting its importance in high-demand contexts such as a hospital. From the implementation of this project, it contributed to temporarily restoring the structure of the parents' routines. Additionally, through workshops, parents were allowed to participate in meaningful activities, helping them reconnect with their personal interests and rediscover their ability to act, even in a context of high emotional load.
dc.description.abstractLos cambios en las rutinas diarias afectan significativamente la calidad de vida de las personas, en particular cuando se trata de cambios generados por una condición médica grave que termina en la hospitalización de una unidad de cuidados intensivos, tanto para el paciente como para su entorno familiar, en especial en los padres, afectando sus roles y equilibrio ocupacional. El objetivo de este proyecto es diseñar un programa de autocuidado para padres de niños hospitalizados en las Unidades de Cuidados Intensivos del Hospital del Niño Dr. José Renán Esquivel, para promover el equilibrio ocupacional. Para ello, se utilizó un enfoque cualitativo a partir de una entrevista semi-estructurada que permitió conocer del impacto en el equilibrio ocupacional de los padres al tener un hijo en UCI. Esta entrevista reveló que los padres enfrentan dificultades para organizar sus actividades diarias y mantener sus ocupaciones. Ante esta realidad, surge “CuidArte”, un programa de autocuidado diseñado para apoyar a los padres en áreas de mayor desequilibrio ocupacional. Este programa promueve el autocuidado como una ocupación significativa, destacando su importancia en contextos de alta demanda como un hospital. A partir de la implementación de este proyecto se contribuyó a restaurar temporalmente la estructura de las rutinas de los padres, además por medio de talleres que permitieron que los padres participaran en actividades significativas, ayudándoles a reconectarse con sus intereses personales y a redescubrir su capacidad para actuar, incluso en un contexto de alta carga emocional.
dc.description.sponsorshipChanges in daily routines significantly affect people's quality of life, particularly when they are caused by a serious medical condition that results in hospitalization in an intensive care unit, both for the patient and their family environment, especially for the parents, affecting their routines, roles, and occupational balance. The present project aims to design a self-care program for parents of children hospitalized in the Intensive Care Units of the Dr. José Renán Esquivel Children's Hospital, to promote occupational balance. To this end, an interview was conducted to understand the impact on the occupational balance of parents with a child in the ICU. This interview revealed that parents face difficulties in organizing their daily activities and maintaining their occupations. Given this reality, "CuidArte" emerges, a self-care program designed to support parents in areas of greater occupational imbalance. This program promotes self-care as a meaningful occupation, highlighting its importance in high-demand contexts such as a hospital. From the implementation of this project, it contributed to temporarily restoring the structure of the parents' routines. Additionally, through workshops, parents were allowed to participate in meaningful activities, helping them reconnect with their personal interests and rediscover their ability to act, even in a context of high emotional load.
dc.formatapplication/pdf
dc.format.extent100 páginas
dc.identifier.urihttps://repositorio2.udelas.ac.pa/handle/123456789/1695
dc.languagespa
dc.publisherUniversidad Especializada de las Américas
dc.relation.urihttps://creativecommons.org/licenses/by-nc-sa/4.0/
dc.rightshttps://creativecommons.org/licenses/by-nc-sa/4.0/
dc.rightsinfo:eu-repo/semantics/openAccess
dc.rights.licensehttps://creativecommons.org/licenses/by-nc-sa/4.0/
dc.rights.urihttps://creativecommons.org/licenses/by-nc-sa/4.0/
dc.subjectautocuidado
dc.subjectequilibrio ocupacional
dc.subjecthospitalización infantil
dc.subjectpadres
dc.subjectterapia ocupacional
dc.subjectoccupational balance
dc.subjectoccupational therapy
dc.subjectpediatric hospitalization
dc.subjectparents
dc.subjectself-care
dc.titlePrograma de autocuidado para padres de niños en la Unidad de Cuidados Intensivo, Hospital del Niño Dr. José Renal Esquivel
dc.typeThesis
dc.typeinfo:eu-repo/semantics/bachelorThesis
dc.typeinfo:eu-repo/semantics/updatedVersion
repositorio.trabajodegrado.carreraLicenciatura en Terapia Ocupacional
repositorio.trabajodegrado.facultadFacultad de Ciencias Médicas Y Clínicas
repositorio.trabajodegrado.sedePanamá
repositorio.trabajodegrado.tipoProyecto - Licenciatura

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